Friday, January 20, 2012

Making lemonade

First and foremost I am thankful that we are able to afford a really good insurance plan and for everything that they cover.  However, the burden has been since 1990, I haven't really had a choice except to choose the best PPO out there.  I cannot afford to have my retinal disease show up and be told "um we are going to choose your doctor", "we don't cover that doctor" or "no, you can't leave the area or the state to see the best specialist there is".  Thus my budget includes a pretty big hit for insurance.  

The curse is, when it comes to disability there is a kind of limbo you can end up living in. This is the place where your insurance doesn't cover expenses and you cannot get any kind of government assistance.The Federal definition for a vision disability is the definition of legal blindness which is 20/200.  I am 20/100 in my left eye with no central vision and 20/90 in my right.  I may never be 20/200.  My insurance will also only cover "vision rehabilitation" when I reach 20/200. Basically, I am in limbo until my vision is 20/200, which may never happen.  .

Luckily, at a low vision support meeting someone told me to check out the department of vocational rehabilitation.  I am working with a local office and they have been WONDERFUL.  They have paid for some evaluations that my insurance would not cover.  They are definitely working with me in this gap between private insurance and the government. And for that I am extremely grateful.

The bottom line, you have to struggle due to the limitations of your disability. However, you have to work really hard at getting help, so you don't blow through all your savings to obtain goods and services that will increase your quality of life. You need to be grateful for the good stuff and then when it comes to the hard stuff push through, because the solution for those things comse with hard work.

 Life backs up in the drive way and drops tons of lemons, it is work to make all that lemonade, but just think how refreshing that first glass is going to be when it is all done! FYI I am not awlays the most gracious lemonade maker, some days I am inside thinking "if I don't acknowledge the presence of lemons, I don't have to do anything right?".  At least until the neighbors start to complain about the rotting pile of lemons out front.  Hey is THAT in the covenants?

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